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Back to search resultsResolution 150359

Recognizing May 2015 as Amyotrophic Lateral Sclerosis (ALS) Awareness Month to honor the individuals living with ALS and to urge the President and Congress of the United States to enact legislation to provide additional funding for research in order to find a treatment and a cure for ALS.

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File details

Status
Adopted
Type
Resolution
Introduced
April 16, 2015
Sponsors
COCouncilmember O'BrienMark SquillaCTCouncilmember TascoCGCouncilmember GoodeKenyatta JohnsonCPCouncil President ClarkeCNCouncilmember NeilsonCQCouncilmember Quiñones SánchezCurtis Jones, Jr.Cindy BassCHCouncilmember HenonCOCouncilmember OhCBCouncilmember BlackwellCRCouncilmember Reynolds Brown

Full Bill

WHEREAS, Amyotropic Lateral Sclerosis or ALS, also known as Lou Gehrig's disease

is a progressive and fatal neurodegenerative disease that affects nerve cells in the brain and the spinal cord; and

WHEREAS,

The word

A-myo-trophic comes from the Greek language, which translates to "No muscle nourishment." This lack of nourishment causes muscles to atrophy causing muscle weakness, especially involving the arms and legs, speech, swallowing or breathing; and

WHEREAS, ALS does not affect a patient's mental capacity, so that the patient remains alert and aware of his or her loss of motor functions and the inevitable outcome of continued deterioration and death; and

WHEREAS,

A

pproximately 5,600 people in the U.S. are diagnosed with ALS each year and it is estimated that as many as 30,000 Americans may have the disease at any given time; and

WHEREAS, On average, patients diagnosed with ALS only survive two to five years from the time of diagnosis; and

WHEREAS, ALS has no known cause, means of prevention, or cure; and

WHEREAS, While ALS occurs throughout the world with no racial, ethnic or socioeconomic boundaries, research indicates that military veterans are approximately twice as likely to develop ALS as those who have not served in the military; and

WHEREAS, The U.S. Department of Veterans Affairs recognizes ALS as a service-connected disease and provides financial and medical support to those with at least 90 continuous days of military service; and

WHEREAS, The National ALS Registry is a congressionally mandated registry for persons in the U.S. with ALS. It is the only population-based registry in the U.S. that collects information to help scientists learn more about who gets ALS and its causes; and

WHEREAS, Amyotrophic Lateral Sclerosis Awareness Month increases the public's awareness of ALS patients' circumstances and acknowledges the terrible impact this disease has not only on the patient but on his or her family and the community and recognizes the research being done to eradicate this horrible disease; now, therefore

RESOLVED, BY THE COUNCIL OF THE CITY OF PHILADELPHIA, That we hereby recognize May 2015 as Amyotrophic Lateral Sclerosis Awareness Month in the City of Philadelphia to honor the individuals living with ALS and to urge the President and Congress of the United States to enact legislation to provide additional funding for research in order to find a treatment and a cure for ALS.

End

Timeline

File history

A file can move through several public steps, including introduction, hearings, amendments, votes and final action. This timeline puts those events in date order, groups routine entries from the same day, and attaches published member votes to the action they record.

  1. Council ActionCITY COUNCIL

    ADOPTED

    Other recorded action without a published tally.

    Official action detail

    Source: LegislationDetail.aspx · gridLegislation

    UnanimousCITY COUNCIL

    Introduced and Ordered Placed on This Week's Final Passage Calendar

    Marked unanimous; no member-by-member tally published.

    Pass
    Official action detail

    A motion was made by Councilmember O'Brien that this matter be Introduced and Ordered Placed on This Week's Final Passage Calendar. The motion carried unanimously.

    Source: LegislationDetail.aspx · gridLegislation